Why? That is a question that I get asked frequently and over half of the time I have no answer. "Why does God have teeth", "Why do butterflies taste with their feet instead of their mouths", "Why are people mean". These are just a few of the "why" questions that I have received for which I have no answers.
The one "why" that I can answer is "why did you start a blog?" For one reason, my husband keeps bugging me so I decided to try writing one. However, my main reason for writing this blog is to try to help other mothers/families who are going through some of the same things that we have and are currently experiencing. If I can help one mother who is in the NICU, one mother who has a child with a rare disease, one mother who is terrified of having a child on a trach and a ventilator, or one mother who is having trouble juggling "normal" life with a "special needs life" then I will be happy. My goal is to help raise awareness for my son's rare disease and to give people an insight into the daily struggles and triumphs of raising a family dealing with a rare diagnosis.
So, welcome to my blog and thanks for reading.